“She can’t even cry out from the pain” 😢 For 15 years, Jenny has lived frozen in bed—any movement could cause her spine to collapse. Her rare condition left doctors baffled, but her poetry gave her a voice. Now, thanks to strangers and stars rallying behind her, hope is finally within reach. Her full story will stay with you—read it in the article below 👇
Jenny Rowbury, a 34-year-old woman from England, has spent nearly half her life confined to a bed, unable to move without risking catastrophic injury. Her condition is so severe that even the smallest shift in position could cause her spine to collapse.
Jenny suffers from a rare genetic disorder known as Ehlers-Danlos syndrome, which affects the body’s connective tissues. In her case, it means extreme joint hypermobility and an unstable spine due to a deficiency of collagen—an essential protein that gives structure to the skin, ligaments, and bones.
Before her diagnosis, Jenny lived a completely normal life. She was studying at university, enjoying her youth, and had no idea that her body was hiding a silent and dangerous condition. Everything changed when she turned 19. Gradually, her body began to deteriorate, until even sitting up became impossible.
Hoping for relief, Jenny underwent spinal surgery in 2020. But the operation brought little improvement. “She lives in constant pain, but it’s so intense she can’t even cry out,” her mother Ann shared. “Her condition is so rare that even top neurosurgeons in the UK are unsure how to help her.”
Despite her physical limitations, Jenny has found a powerful outlet in writing. From her bed, she composes poetry that has touched thousands. Her collection, Rainbow in My Eyes, has inspired readers and helped bring attention to her story.
Thanks to the emotional impact of her poems, Jenny’s case reached public awareness. A fundraising event featuring well-known British actors helped raise most of the £750,000 needed for potential treatment and rehabilitation in the U.S. The rest is being gathered through online donations.
Have you ever heard of a story that moved you this deeply? Tell us what you think in the comments.
